This past week my parents went out of town. I was on my own for most of the week and it was fairly uneventful. I stuck close to home most of the week and took it easy. I had to watch my nieces on Friday, which is one of the main reasons I didn't do much of anything. They are always so good and helpful when they are with me. It also makes a HUGE difference that they can pretty much take care of themselves now. I couldn't handle them if they were babies or toddlers with all the diapers, feeding, picking up, putting down, chasing, etc. I just couldn't do all that anymore. So, we just made the best of our day and went to the pool. Thank goodness the humidity was gone or I would have had to keep them inside. I found a nice shaded spot and just chilled out. I only get in the water a couple of times because I can't tolerate the direct sun long (even with super high SPF) and also because I fatigue so easily.

When they left Friday night I immediately crashed. I slept all night, got up this morning for a chat with my parents, and then went back to bed for about 4 more hours. I'm tired and sore. I've been working off and on this afternoon completing my Social Security Disability Review paperwork - my hands are killing me from writing. Fun. Fun. You have to list nearly everything and anything about your health - I'm surprised they don't want details about when I use the bathroom or blow my nose! Yes, it's very detailed. Anyway, I have no problem letting them know all the crap I deal with. My life is not a picnic. Some might think it's just dandy to not work and be home all the time, but it truly isn't. There is zero fun in being chronically ill. Trust me, I'd trade places with a healthy person any day of the week.